According to medical statistics, about 100,000 people are diagnosed with Alpha-1 Antitrypsin deficiency in our country. It's where the liver doesn't produce protein to protect the lungs from white blood cells, causing asthma like symptoms and chronic bronchitis.
Chuck Price of Gerrardstown was a life long sufferer, and at one point he says he thought he was not going to live.
"When it damaged my lungs to a point, it rapidly progressed it came to pretransplant 12 percent lung function and on oxygen 24/7," said Price.
Thanks to a double lung transplant in April, his outlook has changed.
"Just to get on the list you have a lot of process to go through," said Price. "You have to keep yourself really healthy, that's why I have been at this center since last year, to get myself to a point where I can make the list."
Now Price is starting a foundation called Chuckies Second Wind to raise funds to find a cure for the disease, along with promoting awareness for organ donation. He's also preparing for next Saturday's Apple Trample 5K while promoting awareness for both causes.
"All recipients of transplants have a drug regime, so you going to have to watch your diet, but everybody my age should be doing that a lot of walking, some strength training," said Price.
"He progressed fabulously because his strength was already there. That gave him his endurance," said Brian White, an exercise physiologist at
The race starts next Saturday morning at the
Click here for Chuckies Second Wind.